Facility and Patient Engagement
Project Overview
As directed by CMS, the Network must provide technical assistance to 30% of dialysis facilities within the Network service area, to help support patient and family engagement activities. These activities include the following: establishing and/or educating patients about support groups/new patient adjustment groups, peer mentoring programs, and/or patient councils; incorporating patient, family and caregiver participation into Quality Assurance Performance Improvement (QAPI) and/or governing body; and with increasing active patient participation in the care planning process.
The goal of the project is to increase facility activities related to each of the three areas. Specifically, the Network must obtain the following goals:
- 50% relative improvement in the number of facilities that implement support groups/new patient adjustment groups/patient councils or that provide access to information about various groups
- 75% relative improvement in the number of facilities that include patients/caregivers/family in monthly QAPI meetings and/or governing body
- 10% relative improvement in the number of patients/caregivers/family members involved in the development of individualized care planning
To book an appointment related to any Quality Improvement, click here.
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Care Planning
- Care Planning Checklist
- My Care, My Voice: The Treatment Care Plan
- The SHARE Approach: Essential Steps of Shared Decision Making
- The SHARE Approach Quick Reference Guide
- My Dialysis Plan Care Team Guide
- My Dialysis Plan Program Overview
- My Dialysis Care Conference
- ESRD Personal Life Plan – English | Spanish
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QAPI
- Dialysis Patient Engagement in QAPI Processes
- Patient Engagement in Quality Assurance and Performance Improvement (QAPI)
- Certificate of Appreciation
- ESRD QAPI: Steps to Engage Patients – English | Spanish
- ESRD QAPI Patient Invitation – English | Spanish
- ESRD QAPI – Medical Director Discussion
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Support Groups
- Support Group Basics
- Support Groups
- Starting a Support Group: A Social Worker’s View
- Simple Steps to Starting a Support Group
- Online Support Groups
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Tools and Resources
- 2020 Patient and Family Engagement Kick-Start Webinar
- Patient Engagement in Action Webinar
- Patient Engagement in Research Toolkit
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National Coordinating Center (NCC) Learning and Action Network (LAN) Calls
- January 29, 2020: Dialysis Center Support Group & Patient Family Engagement – Event recording and CE information
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National Patient & Family Engagement (NPFE) Learning and Action Network (LAN) Resources
BLOODSTREAM INFECTIONS
- Tips for Staying Healthy Outside the Dialysis Clinic
- Tips for Staying Healthy Outside the Dialysis Clinic (Spanish)
- Guide to a Healthier You
- Guide to a Healthier You (Spanish)
- CDC Clean Hands Count — The ESRD NCC 2016 NPFE-LAN members adapted the CDC’s Clean Hand’s Count campaign to make the materials applicable to ESRD and dialysis care.
- Conversation Starter to Prevent Infections in Dialysis Patients
- CDC Audit Tool: Hemodialysis hand hygiene observations
HOME DIALYSIS
- Choosing Home Dialysis with Your Care Team
- Choosing Home Dialysis with Your Care Team (Spanish)
- My Home Dialysis Checklist
- My Home Dialysis Checklist (Spanish)
- Conversation Starters for Home Dialysis
- Uncovering Myths About Home Dialysis: Myths vs. Reality
- Home Dialysis: Myth vs. Reality One-Pager
- Home Dialysis Announcement — Originally created as part of the Patient Selected Affinity Group – 8.5″x11″ | 8.5″x14″
KIDNEY TRANSPLANT
- Get the Facts: Kidney Transplantation
- What is a Kidney Transplant?
- What Is a Transplant Center?
- Meet the Members of the Transplant Team
- Types of Kidney Donors
- The Kidney Transplant Surgery
- Post-Transplant Kidney Diet
- How Much Does a Kidney Transplant Cost?
- Partnering Along the Road to Transplant – English – Spanish
- Why Transplant is a Good Idea for Me flyer
- The Road to Transplant brochure
- Transplant Celebration Announcement — Originally created as part of the Patient Selected Affinity Group – 8.5″x11″ | 8.5″x14″
PATIENT-SELECTED TOPIC
- Questions to Help with Your Treatment Choice
- Questions to Help with Your Treatment Choices (Spanish)
- Questions to Get You Started
- Questions to Get You Started (Spanish)
- Goal Setting Workbook
- Tips for Caregivers
- Health Status Release Form
- Memorial Card
- In Memory Poster—8.5″x11″
- In Memory Poster—8.5″x14″